HSCT Non-Responder Life with Progressive Multiple Sclerosis +19 Months through +21 Months
The Hard Truth and Reality I am continuing to FIGHT to stop the disability given to me by progressive multiple sclerosis, but I am losing the battle. I am not trying to get better. I am trying not to get worse. Without stopping disability progression, I cannot entertain the thought of getting better. I do not walk at all outside of the home unless the distance is extremely short (like a few feet) and I can hold onto my husband. Inside the home, I can only take between 10-15 steps with a walker. I can barely lift either leg. I found out in June 2020 I have permanent nerve damage in my right lower leg and foot. Both feet drag on the floor and my balance is really bad. I voluntarily stopped driving in May 2020. I still can drive, but I cannot do anything by myself out of the car, so there is no point to me bothering with that. I did get an AFO (ankle foot orthotic) in May 2020 for my right leg, but it only helps a tin...