HSCT Non-Responder Life +13 Months through +15 Months Post HSCT
I may be a non-responder to Autologous Hematopoietic Stem Cell Transplant ( HSCT - chemotherapy and stem cell therapy), but my fighting mode against progressive multiple sclerosis (MS) has not waned. I am more passionate than ever about finding a way to get ahead of this chronic disease. I am still doing the things mentioned in previous posts. The main thing that has changed for me is using a wheelchair when I need to go distances that I used to be able to walk a year or so ago along with a lot of wall touching and using Steven for security. I still LOVE my Segway hover board with a handle (handle sold separately), but I can't take it everywhere. I also found that using one leg (as opposed to both) to pedal my Alinker (walk training tricycle thingy) is doable, so when it gets warmer, I will be taking it out for a spin. I did replace and reposition the seat of this contraption. I mentioned previously that I am not a big fan of the EDSS Scale (measure MS disabil...